Many people with slow-growing or early KS often find that physically they feel quite well, but emotionally may find it difficult to cope. For some people the appearance of KS is the first sign that they have Aids. In this situation, coming to terms with the diagnosis, whether they knew about it beforehand or not, together with the constant physical reminder of their illness, can be devastating.

It often helps to talk to someone who understands the special needs and problems of people with Aids, their partners and families. A large number of organisations offer help and support to people with Aids. Some of the main Aids organisations in the UK are listed in this section (see organisations). Local support groups can also provide support and you can get details of these from The Terrence Higgins Trust.

People affected by Kaposi's sarcoma in the skin may find this distressing. However, there is a way to reduce the differences in skin colour and make the areas of KS less noticeable. Camouflage make-up consists of specially designed creams, and the ranges available are suitable for all skin types and colours, in both men and women. Some clinical nurse specialists, the British Association of Skin Camouflage and the British Red Cross offer a camouflage make-up service with individual teaching sessions on how to apply it for the best effect.

If KS has caused swelling of the limbs and lymph nodes (lymphoedema), you may have hot, overstretched and painful skin in those areas. We have a section on lymphoedema, and our cancer information and support service can give you details of your nearest lymphoedema clinics.

If you are finding it difficult to eat and are losing weight, it may be advisable to take small, frequent, high-calorie, high-protein drinks which are available from chemists and hospital dietitians. If cleaning your teeth is painful because of mouth lesions, try using a soft toothbrush or foam stick.